Brexit To End Access To Medicinal Cannabis For Sick Children
In a letter sent to pressure groups, clinics, and patient groups last week, we warn that post-Brexit severely epileptic children, who are essentially dependent on medical cannabis, will be warned that all prescriptions issued in the UK will not be followed after the transition period. In practice, this means that they no longer have what they need, as the supply chain is located in the Netherlands. Ensure that prescribers are informed about alternatives to unlicensed cannabis-based medicines and are given information to make the best choice for their patients and to ensure that immediate action is taken, if not already taken.
Time and again, Pain and his family have desperately appealed to the Prime Minister, the Health Secretary, and the NHS for urgent help, but their needs continue to be ignored. Pain said: "This letter is of great concern to families who already have difficulty looking after seriously ill children. The fact that this letter was sent so close to the end of the transitional period has led us to try to find a solution based on very limited information.
These children are a matter of life and death and it is imperative that the government act now to find a solution and help these families.
Hannah Deacon's son Alfie Dingley suffers from an extreme drug - a resistant form of epilepsy that is often life-threatening if left untreated. He was part of the campaign that led to a change in the law in 2018 that made him the first patient in the UK to be granted a permanent license for medicinal cannabis. With private medical cannabis prescriptions costing around £2,500 a month and the associated extra costs and complications, many families are forced to solicit donations to charities, but most fundraising efforts have been on hold since the outbreak of the COVID-19 pandemic in March. Around 40 children across the UK are currently receiving cannabis oil as a treatment for their epilepsy, and only three of them are believed to have received their prescriptions, meaning the rest of these families will have to pay for the privilege of private access to their medicines. Cannabis oil for all other conditions was legalized across the UK in 2018 for all children under 18, except for serious conditions such as cancer, epilepsy, and HIV / AIDS.